How is my information being kept confidential?

Participants' privacy and the appropriate use and protection of participants' data are paramount. Imperial College will ensure the research complies fully with the requirements of the General Data Protection Regulation (GDPR) and the Data Protection Act 2018. All individually identifiable data (such as name and address) will be dealt with in the strictest confidence. Individually identifiable data will be separated from health and mobile phone use information to preserve confidentiality. All participants' data will be stored on a secure computer network at Imperial College. The results of this study will be published following independent review, but no individually identifiable data will ever be published. 

Will my data be shared with any other researchers?

Data may be shared with researchers of the international COSMOS consortium or with other university research collaborators. However, no individually-identifying data (such names, addresses, phone numbers etc) will ever be passed onto these research groups.

I haven’t heard from the study in a while...

You are still enrolled in the study. The COSMOS study is a long-term project and will be ongoing for many more years. We try not to contact our participants unnecessarily, but this does not mean we have forgotten about you. We will provide a new questionnaire every few years and will be in touch when there is a live survey to be completed. In the meantime, our website is updated regularly with the latest developments and results from the study, and you can also follow us on Twitter and like us on Facebook for the latest information.

I no longer live in the UK– can I still take part?

Your data remains valuable to our study – we would still like to follow your health and keep your information in case you ever return to this country. Please update your address in the participant portal and stay tuned for more information.

I've changed my mind about participating in COSMOS

Every COSMOS participant has the right to withdraw at any time, without providing a reason. If you are considering withdrawing from the study, please contact call us on 020 7594 1892 (Monday - Friday 9:00am - 5:00pm, excluding Bank Holidays) or email us at ukcosmos@imperial.ac.uk.

If you decide to withdraw, please choose one of the following options concerning future contact and use of information:

  • 1. No further contact – this means that COSMOS would no longer contact you directly, but would still have your permission to retain and use information provided previously and to obtain and use further information from your health records.
  • 2. No further access – this means that COSMOS would no longer contact you or obtain further information from your health records in the future, but would still have your permission to use the information provided previously.
  • 3. No further use – this means that, in addition to no longer contacting you or obtaining further information, COSMOS would destroy all of your information previously provided.

We would like to remind you that you are free to withdraw your voluntary consent at any point, and doing so will not affect your healthcare, healthcare rights or your relationship with your mobile network operator.

My question is not listed here

Please refer to the Information Booklet (available below) for more information. For all other enquiries, please don’t hesitate to get in touch with the team on our helpline on 020 7594 1892 (Monday – Friday 9:00am – 5:00pm, excluding Bank Holidays). Alternatively, we can be reached via email at ukcosmos@imperial.ac.uk or through the contact form below.

Information Booklet

The 2017 Participant Information Booklet contains comprehensive information about COSMOS and the 2017/2018 follow-up questionnaire. The booklet is available for participants to download here.

The Original (Recruitment) Participant Information Booklet is also available for participants to download here.

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