Participants' privacy and the appropriate use and protection of participants' data are paramount. Imperial College will ensure the research complies fully with the requirements of the General Data Protection Regulation (GDPR) and the Data Protection Act 2018. All individually identifiable data (such as name and address) will be dealt with in the strictest confidence. Individually identifiable data will be separated from health and mobile phone use information to preserve confidentiality. All participants' data will be stored on a secure computer network at Imperial College. The results of this study will be published following independent review, but no individually identifiable data will ever be published.
Data may be shared with researchers of the international COSMOS consortium or with other university research collaborators. However, no individually-identifying data (such names, addresses, phone numbers etc) will ever be passed onto these research groups.
You are still enrolled in the study. The COSMOS study is a long-term project and will be ongoing for many more years. We try not to contact our participants unnecessarily, but this does not mean we have forgotten about you. We will provide a new questionnaire every few years and will be in touch when there is a live survey to be completed. In the meantime, our website is updated regularly with the latest developments and results from the study, and you can also follow us on Twitter and like us on Facebook for the latest information.
Your data remains valuable to our study – we would still like to follow your health and keep your information in case you ever return to this country. Please update your address in the participant portal and stay tuned for more information.
Every COSMOS participant has the right to withdraw at any time, without providing a reason. If you are considering withdrawing from the study, please contact the Freephone number on 08000 270 270 or email us at firstname.lastname@example.org.
If you decide to withdraw, please choose one of the following options concerning future contact and use of information:
We would like to remind you that you are free to withdraw your voluntary consent at any point, and doing so will not affect your healthcare, healthcare rights or your relationship with your mobile network operator.
Please refer to the Information Booklet (available below) for more information. For all other enquiries, please don’t hesitate to get in touch with the team on our Freephone helpline on 08000 270 270 (Monday – Friday 8.00am – 5.30pm, excluding Bank Holidays). Alternatively, we can be reached via email at email@example.com or through the contact form below.
The 2017 Participant Information Booklet contains comprehensive information about COSMOS and the 2017/2018 follow-up questionnaire. The booklet is available for participants to download here.
The Original (Recruitment) Participant Information Booklet is also available for participants to download here.