Data protection

How will information about me be kept confidential?

Your privacy and confidentiality are important to us. Imperial College has sought advice from the Information Commissioner to ensure that this research study complies fully with the requirements of the Data Protection Act 1998. All individually identifiable data will be dealt with in the strictest confidence. All data will be stored securely on a private computer network at Imperial College. The results of this study will be published following independent review but no individually-identifying data will ever be published.


Who will be able to access and use my information?

Your health and mobile phone use information will be stored securely on a private computer network at Imperial College and will be accessed by the academic research team. Your identifying information including name and address will be kept separately from your health and mobile phone use information. Access to your personal identifying information will be limited to a few members of the academic research team at Imperial College, who will be required to sign strict non-disclosure agreements. Data collected during the study may be sent to researchers in other countries who form part of the international COSMOS cohort and where the laws may not protect your privacy to the same extent as the Data Protection Act in the UK. However, Imperial College will protect your privacy by ensuring that these international researchers will only have access to anonymised information that does not identify you. No personal identifying information will ever be passed to international research teams.